A Florida mother is outraged she has to prove her son is dying so he doesn't have to take the FCAT.

News 13 first introduced you to Ethan Rediske in April 2013 after his mother was upset over the state's standardized testing laws that require him to take the FCAT, even though the 11-year-old has was born with severe brain damage and cerebral palsy.

Ethan's health recently took a turn for the worse and his mother, Andrea Rediske, had to bring in hospice care.


UPDATE: The Rediske family says Ethan died Friday.
Read the latest story.

The previous story continues below.


The last few weeks have been the toughest. Andrea said she's helping to administer morphine and make Ethan's last days comfortable.

When she reached out to the Orange County School District to tell them what was happening, Andrea said the district told her she needed to provide more proof than that to exempt him from the FCAT this year.

In an email to News 13, Andrea told us instead of getting sympathy and compassion from the school district, she's being forced to waste time coming up with the written proof.

Andrea said she was appalled and claimed the district has even threatened Ethan's at-home teacher because she won't help prepare him for the testing.

Once again, Rediske reached out to Orange County School Commissioner Rick Roach:

I'm writing to appeal for your advocacy on our behalf. Ethan is dying. He has been on hospice care for the past month. We are in the last days of his life. His loving and dedicated teacher, Jennifer Rose has been visiting him every day, bringing some love, peace, and light into these last days. How do we know that he knows that she is there?  Because he opens his eyes and gives her a little smile. He is content and comforted after she leaves.

Jennifer is the greatest example of what a dedicated teacher should be.

About a week ago, Jennifer hesitantly told me that the district required a medical update for continuation of the med waiver for the adapted FCAT.

Apparently, my communication through her that he was in hospice wasn't enough: they required a letter from the hospice company to say that he was dying. Every day that she comes to visit, she is required to do paperwork to document his "progress." Seriously? Why is Ethan Rediske not meeting his 6th-grade hospital homebound curriculum requirements? BECAUSE HE IS IN A MORPHINE COMA. We expect him to go any day. He is tenaciously clinging to life.

This madness has got to stop.  Please help us.

Thank you,
Andrea Rediske

"I don't know if it gets any more extreme than this," said Roach. "She actually had to get a note from hospice saying that he was dying and in a morphine coma."

Roach said he has been trying to lobby lawmakers to change the laws since he met Ethan and other students like him in early 2013. He wants the law changed so severely disabled children will always be exempt from testing.

"I want a new law made that matches the kids in these conditions," said Roach, "Kids ought to be able to have laws that serve them."

After News 13 reported Ethan's story, as well as the story of other students like him, including a severely disabled blind student in Orange County, state lawmakers made an amendment to the FCAT testing law that allows parents to request a waiver in chronic illness cases that lasts longer than a year, but it's a long and involved process.

State Rep. Linda Stewart, D-Orlando, was a part of that effort, but admitted the amendment didn't go far enough to help in Ethan's case.

"Unfortunately, what happened last year did not help this situation, and we just need to keep working on it, so other parents are not in this situation," said Stewart.

She added several lawmakers will meet in the Florida House Education Committee in the next few weeks to brainstorm how to fix the law.

Stewart hoped to have changes made by March.

As for Andrea Rediske, she said she only wants Ethan's story made public so other families don't have to go through similar issues.